THRIVE is a collaborative initiative to engage, embrace and drive change in the rare disease community. By acknowledging the need to communicate and lean on the strengths of our allies, brighter futures will come.



As members of the rare advocacy community, we understand that we are an integral part of a much larger and growing ecosystem working to effect positive change in the rare disease space.

We can accomplish more through thoughtful collaboration and build a rare disease future that is bright. THRIVE aims to share our strengths and lean on our allies in areas of weakness. 

We understand that when we conduct ourselves in a manner that is collaborative and empowers others, the rare community truly THRIVEs!



The establishment of THRIVE can be attributed to the following collaborators.