
Why THRIVE?
As members of the rare advocacy community, we understand that we are an integral part of a much larger and growing ecosystem working to effect positive change in the rare disease space.
We can accomplish more through thoughtful collaboration and build a rare disease future that is bright. THRIVE aims to share our strengths and lean on our allies in areas of weakness.
We understand that when we conduct ourselves in a manner that is collaborative and empowers others, the rare community truly THRIVEs!
COLLABORATORS
The establishment of THRIVE can be attributed to the following collaborators.
Nicole Boice
Global Genes
Amy Miller
Child Neurology Foundation
Monika Jones
Brain Recovery Project
Kelly Ranallo
Turner Syndrome Global Alliance
Kari Rosbeck
Tuberous Sclerosis Alliance
Vanessa Vogel-Farley
Dup15Q Alliance
Kendall Davis
PRA Health Scienes
Margie Frazier
Batten Disease Support and Research Association